Kvaliteta života roditelja djece s teškoćama u razvoju

master's thesis

• Title (english): Quality of life of parents of children with developmental disabilities
• Author: Veronika Jelinić
• Mentor: Zdravka Leutar (mentor)
• Committee member: Zdravka Leutar (predsjednik povjerenstva)
• Committee member: Marko Buljevac (član povjerenstva)
• Committee member: Marina Milić Babić (član povjerenstva)
• Granter: University of Zagreb; Faculty of Law; (Social Work Studies); Zagreb
• Defense date and country: 2022-07-12, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Social Activities; Specific Areas of Social Work

Abstract

Kvaliteta života je multidimenzionalni koncept koji se istražuje često, na različitim populacijama i područjima. U ovom radu govori se o kvaliteti života roditelja djece s teškoćama u razvoju. Naime, kvaliteta života je podložna promjenama uslijed svih izazova s kojima se suočavaju roditelji, a koji su posebice stresni za roditelje djece s teškoćama u razvoju. Pregledom dostupne literature uočeno je da je kvaliteta života roditelja djece s teškoćama u razvoju generalno nešto niža u usporedbi s istom kod roditelja djece urednog razvoja te da je povezana s većim brojem čimbenika, primjerice s roditeljskim stresom, socijalnom podrškom ili pak sa strategijama suočavanja. Cilj ovoga rada je sustavno prikazati dio znanstvenih spoznaja s ovog područja u razdoblju od 2012. godine do danas. Promjene u kvaliteti života, ali i na brojnim drugim područjima, povezane su u novije vrijeme s aktualnom pandemijom COVID-19 kojom su pogođeni i roditelji djece s teškoćama u razvoju. Budući da u Hrvatskoj sustav prava i usluga za ove roditelje nije dovoljno razvijen, spoznaje iz ovoga rada mogu potaknuti aktivnosti unaprjeđenja istoga. Posebno se ističe usluga rane razvojne podrške s obzirom na važnu ulogu različitih oblika socijalne podrške u kvaliteti života roditelja djece s teškoćama u razvoju. Ovim roditeljima mogu biti korisne različite metode socijalnog rada, a neke od njih predložene su u radu.

Abstract (english)

Quality of life is a multidimensional concept that is explored frequently, in different populations and areas. This paper discusses the quality of life of parents of children with disabilities. Namely, the quality of life is subject to changes due to all the challenges faced by parents, which are especially stressful for parents of children with disabilities. A review of the available literature showed that the quality of life of parents of children with disabilities is generally somewhat lower than that of parents of children with normal development and that it is associated with a number of factors, such as parental stress, social support or coping strategies. The aim of this paper is to systematically present part of the scientific knowledge in this field in the period from 2012 to the present. Changes in the quality of life, but also in many other areas, have recently been linked to the current COVID-19 pandemic, which has also affected parents of children with disabilities. Since the system of rights and services for these parents in Croatia is not sufficiently developed, the findings from this paper can encourage activities to improve it. The service of early intervention is especially emphasized, considering the important role of various forms of social support in the quality of life of parents of children with disabilities. Different methods of social work can be useful for these parents and some of them are suggested in the paper.

• Keywords: Quality of life of parents of children with developmental disabilities
• Keywords (english): kvaliteta života; roditelji; djeca s teškoćama u razvoju; roditeljski stres; socijalna podrška; usluge; COVID-19
• Language: croatian
• URN:NBN: urn:nbn:hr:199:970670
• Study programme: Title: Social Work; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra socijalnog rada (magistar/magistra socijalnog rada)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2022-07-13 10:06:39