Suočavanje obitelji s iskustvom malignog oboljenja djeteta- perspektiva stručnjaka

master's thesis

• Title (english): Family Facing The Experience Of Child's Malignant Disease - Expert Perspective
• Author: Anđela Kujundžić
• Mentor: Slavica Blažeka Kokorić (mentor)
• Committee member: Slavica Blažeka Kokorić (predsjednik povjerenstva)
• Committee member: Gordana Berc (član povjerenstva)
• Committee member: Marina Milić Babić (član povjerenstva)
• Granter: University of Zagreb; Faculty of Law; Zagreb
• Defense date and country: 2020-05-28, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Social Activities

Abstract

Cilj ovog istraživanja bio je dobiti uvid u iskustva stručnjaka pomažućih profesija o promjenama u funkcioniranju obitelji te potrebama za podrškom kod obitelji suočenih s malignom bolešću djeteta.
Istraživanje je provedeno sa 6 sudionika, tri psihologa i tri socijalna radnika. Jedan sudionik bio je zaposlenik bolnice, dok su svi ostali bili zaposlenici udruga koje rade s obiteljima s djecom oboljelom od maligne bolesti ili su vanjski suradnici bolnice. Podaci su prikupljani metodom polustrukturiranog intervjua, prosječnog trajanja oko 40 minuta. Podaci su obrađeni metodom tematske analize, a rezultati pokazuju da su reakcije na postojanje malignog oboljenja kod djeteta uglavnom uvjetovane emocionalnim odgovorima, različite su protokom vremena i s obzirom na člana obitelji. Kod promjena u funkcioniranju obitelji događaju se promjene unutarnje organizacije obitelji, organizacije okoline i promjena okoline preseljenjem, mijenja se odnos roditelja i bolesnog djeteta. Olakšavajući čimbenik kod suočavanja je pozitivna komunikacija s medicinskim djelatnicima, jaka prethodna povezanost članova obitelji, sustavna stručna i financijska podrška obiteljima te osobne snage svakog pojedinca. Postoji određena razina usluga koje su dostupne obiteljima, a uglavnom ih pružaju udruge. Istaknuta je potreba razvijanja podrške koja će biti dostupnija i sustavna te potreba poboljšanja šireg društvenog odnosa prema malignim bolestima.

Abstract (english)

The aim of this research was to gain insight into the experiences of assistants professionals about changes in the functioning of the family and the need for support in families facing a child's malignant disease.
The research was conducted with 6 participants, three psychologists and three social workers. One participant was a hospital employee, while all others were employees of associations working with families with children with malignancy or are external associates of the hospital. Data were collected by the method of semi-structured interview, with an average duration of about 40 minutes. The data were processed by the method of thematic analysis and the results show that the reactions to the existence of malignant disease in a child are mainly conditioned by emotional responses, are different over time and depending on the family member. When there are changes in the functioning of the family, there are changes in the internal organization of the family, the organization of the environment and changes in the environment through relocation, the relationship between the parents and the sick child changes. A mitigating factor in coping is positive communication with medical staff, strong prior connection of family members, systematic professional and financial support to families and the personal strength of each individual. There is a certain level of service available to families, mostly provided by associations. The need to develop support that will be more accessible and systematic and the need to improve the wider social attitude towards malignant diseases were emphasized.

• Keywords: strategije suočavanja obitelji; reakcije na saznanje bolesti; promjene u funkcioniranju obitelji; sustavna stručna podrška obiteljima
• Keywords (english): family coping strategy; reactions to cognition of illness; changes in family function; system of structural support for families
• Language: croatian
• URN:NBN: urn:nbn:hr:199:346503
• Study programme: Title: Social Work; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra socijalnog rada (magistar/magistra socijalnog rada)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Closed access
• Created on: 2020-12-23 09:57:56