Neki oblici skrbi o članu obitelji oboljelom od demencije

master's thesis

• Title (english): Some forms of care of a family member suffering from dementia
• Author: Ana Tilinger
• Mentor: Ana Štambuk (mentor)
• Committee member: Ana Štambuk (predsjednik povjerenstva)
• Committee member: Zdravka Leutar (član povjerenstva)
• Committee member: Marko Buljevac (član povjerenstva)
• Granter: University of Zagreb; Faculty of Law; (In social work); Zagreb
• Defense date and country: 2016-09-21, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Social Activities; Social Gerontology

Abstract

Alzheimerova bolest, kao najčešći oblik demencije, progresivna je, neizlječiva i moţe dovesti do potpune ovisnosti o drugima. U Hrvatskoj ne postoji primjerena registracija dijagnosticiranih bolesnika. U vrlo teškom poloţaju je obitelj, odnosno skrbnici oboljelog koji se susreću s brojnim problemima. Preuzimanjem zahtjevne uloge skrbi o članu obitelji, skrbnik često takoĎer postaje »ţrtvom bolesti« koja treba pronaći načine nošenja sa svime što bolest donosi. Kako se njegovatelji nose sa zahtjevima njegovateljske uloge uvelike ovisi o vrsti strategija suočavanja koje koriste u svakodnevnoj brizi za oboljelog. Stoga je cilj istraţivanja dobiti uvid u neke oblike skrbi o članu obitelji oboljelom od demencije. Korištena metoda provedenog kvalitetnog istraţivanja je polustrukturirani intervju. Rezultati ovog istraţivanja ukazuju da su neformalni njegovatelji suočeni sa zahtjevnim zadacima skrbničkog odnosa, oteţanom komunikacijom s oboljelim, problemima na razini sustava, socijalnom izolacijom te narušenim psihofizičkim funkcioniranjem. Nadalje, strategije koje koriste su aktivno suočavanje s problemima u vidu rješavanja problema te aktvinog traţenja savjeta. Osim toga, primjenjuju i strategije usmjerene na emocije u smislu vlastite relaksacije, emocionalne podrške okoline i negiranja. U ovom radu se nastoji istaknuti vaţnost edukacije i osviještavanja javnosti o problemima neformalnih njegovatelja stavljajući naglasak na pruţanju veće podrške i pomoći njegovateljima.

Abstract (english)

Alzheimer’s disease,the most common form of dementia, is a progressive and non-curable disease that can lead to totaldependence on others. There is no adequate registration of diagnosed patients in Croatia. Their families and caregivers are also in a very difficult situation. By assuming a very demanding role of caring for a family member, the carer often becomes »a victim of the disease« who needs to fi nd ways of dealing with the burden of the disease. How do caregivers cope with the requirements of the nursing role is largely dependent on the type of coping strategies used in everyday care for the patient. Therefore, the aim of research to gain insight into some form of care of a family member suffering from dementia. The method used qualitative research is conducted semi-structured interview. Results of this study indicate that the informal caregivers are faced with demanding tasks custody relationships, difficulty in communicating with the sick, the problems at the system level, social isolation and disturbed mental and physical functioning. Furthermore,
the strategies used are actively coping with problems such as problem solving and active search advice. In addition, apply a strategy aimed at the emotions in terms of their own relaxation, emotional support environment and denial. This work seeks to highlight the importance of education and public awareness about the problems of informal caregivers putting emphasis on providing greater support and assistance to carers.

• Keywords: Alzheimerova bolest; demencija; obitelj; njegovatelj; strategije suočavanja
• Keywords (english): Alzheimer's disease; dementia; family; caregiver; coping strategies
• Language: croatian
• URN:NBN: urn:nbn:hr:199:039126
• Study programme: Title: Social Work; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra socijalnog rada (magistar/magistra socijalnog rada)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Closed access
• Created on: 2016-10-26 08:13:34