Formalna i neformalna podrška roditeljima djeteta s dijabetesom tipa 1 i poremećajem senzorne integracije - studija slučaja

master's thesis

• Title (english): Formal and informal support of parents of a child with type 1 diabetes and sensory integration disorder - a case study
• Author: Karla Garac
• Mentor: Marina Milić Babić (mentor)
• Committee member: Marina Milić Babić (predsjednik povjerenstva)
• Committee member: Marko Buljevac (član povjerenstva)
• Committee member: Silvia Rusac (član povjerenstva)
• Granter: University of Zagreb; Faculty of Law; (Social Work Studies); Zagreb
• Defense date and country: 2021-09-17, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Social Activities

Abstract

Formalna podrška se definira kao stručne ili paraprofesionalne intervencije koje uključuju edukaciju i tretman kako za dijete s teškoćama u razvoju, tako i za obitelj. Neformalna podrška se odnosi na emocionalnu podršku i / ili opipljivu pomoć koja je primljena ili percipirana kao dostupna od bliskih članova obitelji, prijatelja, susjeda i slično. Cilj ovog kvalitativnog istraživanja je istražiti iskustva roditelja (djeteta s dijabetesom tipa 1 i poremećajem senzorne integracije) s izvorima formalne i neformalne podrške. Svrha studije slučaja je doprinijeti napretku pojedinog sustava podrške i poboljšanju kvalitete života djece s teškoćama u razvoju i njihovih obitelji. Odabrana metoda istraživanja je studija slučaja jer pruža jedinstveni primjer stvarnih ljudi u stvarnim situacijama i opažaju se efekti u stvarnim okvirima, što je od ključne važnosti s obzirom da je cilj istraživanja individualno iskustvo. Roditelji su općenito zadovoljni sustavom formalne podrške te podjednako aktivno koriste formalnu i neformalnu podršku, ipak u većini se slučajeva oslanjaju na užu obitelj. Prepoznaju problematiku predugog čekanja na testiranja i preglede te potrebu za primarnim djelatnikom koji bi poznavao socijalni i zdravstveni sustav, kao početnom točkom za roditelje. Kao najbolji izvor podrške navode druge roditelje koji se nalaze u sličnim ili istim situacijama te apeliraju na roditelje da budu uporni u traženju pomoći kada posumnjaju na određene teškoće jer djetetov napredak uvelike ovisi o njihovoj upornosti.

Abstract (english)

Formal support is defined as professional or paraprofessional interventions that include education and treatment for both a child with disabilities and a family. Informal support relates to emotional support and/or tangible help that is received or perceived as available from close family members, friends, neighbors and similar. The aim of this qualitative research is to explore the experiences of parents (a child with type 1 diabetes and sensory integration disorder) with sources of formal and informal support. The purpose of the case study is to contribute to the progress of a particular support system and to improving the quality of life of children with disabilities and their families. The chosen method of research is a case study because it provides a unique example of real people in real situations and effects are observed in real terms, which is essential given that the aim of the research is individual experience. Parents are generally satisfied with the formal support system and use formal and informal support equally actively, yet in most
cases they rely on their nuclear family. They recognise the issue of waiting too long for tests and examinations and the need for a primary worker who would know the social and health system, as a starting point for parents. They cite other parents who are in similar or the same situations as the best source of support and urge parents to be persistent in seeking help when they suspect certain difficulties, as the child's progress depends largely on their persistence.

• Keywords: formalna i neformalna podrška; senzorna integracija; dijabetes tip 1; roditeljstvo; studija slučaja
• Keywords (english): formal and informal support systems; sensory integration disorder; type 1 diabetes; parenting; case study
• Language: croatian
• URN:NBN: urn:nbn:hr:199:189525
• Study programme: Title: Social Policy; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra socijalne politike (magistar/magistra socijalne politike)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Closed access
• Created on: 2021-11-24 13:07:08