Uloga neprofitnog sektora u podršci osobama s multiplom sklerozom

undergraduate thesis

• Title (english): The role of the nonprofit sector in supporting persons with multiple sclerosis
• Author: Maja Liković
• Mentor: Marko Buljevac (mentor)
• Committee member: Marko Buljevac (predsjednik povjerenstva)
• Committee member: Zdravka Leutar (član povjerenstva)
• Committee member: Ana Opačić (član povjerenstva)
• Granter: University of Zagreb; Faculty of Law; (In social work); (Social Work with Disabled Persons); Zagreb
• Defense date and country: 2020-09-17, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Social Activities; Specific Areas of Social Work

Abstract

Invaliditet kao opći pojam odnosi se na nepravilnosti u području fizičkog, duševnog, intelektualnog, osjetilnog, psihofizičkog i socijalnog razvoja. Uz opću terminologiju, postoji posebna i pojedinačna terminologija te se kao primjer posebne obrađuje pojam osoba s multiplom sklerozom. Multipla skleroza je kronična, progresivna, neurološka bolest koja utječe na sve aspekte života te time i na kvalitetu života osobe, stoga je pritom vrlo važno uzeti u obzir specifičnosti koje bolest izaziva poput raznih neuroloških i psihičkih oštećenja, nepostojanje učinkovitog izliječenja i nepredvidivost tijeka bolesti. Sama oštećenja i posljedice se kroz vrijeme mogu događati postupno i time postati neprepoznatim gubitkom kojemu je potrebna podrška, posebice od strane iskustvenih eksperta, osoba koje imaju iskustvo doživljenih gubitaka. Osobe s multiplom sklerozom čine kategorijalnu zajednicu te osnivaju udruženja koje povezuje ista bolest poput udruga za multiplu sklerozu. Udruge su dio neprofitnog sektora koji čini civilno društvo, a kroz svoje aktivnosti naglašavaju prava pojedinaca te rješenje vide u senzibilizaciji i promjenama u društvu što čini socijalni model u pristupu invaliditetu.

Abstract (english)

Disability as a general term refers to an impairment in the physical, mental, intellectual, sensory, psychological, and social development. In addition to the general terminology, specific and individual terminology is also used, the concept of people with multiple sclerosis being the example of specific terminology. Multiple sclerosis is a chronic and progressive neurological disease which affects all aspects of life and thus the quality of life of a person living with it. It is therefore extremely important to take into account the specific conditions multiple sclerosis causes, such as various neurological and mental impairments, but also the absence of effective cure and the unpredictability of the course of the disease. The damage can occur over a long period of time and eventually develop into a sort of loss which has failed to be recognized as a symptom. This is why support is necessary, especially from experienced experts, people with lived experience of such loss. Persons with multiple sclerosis form a category-based community and create associations based on the fact that its members share the same diagnosis, and multiple sclerosis associations serve as an example in this case. These associations are part of the non-profit sector that makes up civil society. Through its activities, they elevate the rights of individuals and believe that the key to solving the issues of its members is to sensitise people and make changes in society, which falls under the social model in the approach to disability.

• Keywords: Ključne riječi: multipla skleroza; podrška; neprofitni sektor; socijalni model
• Keywords (english): Key words: multiple sclerosis; support; non-profit sector; social model
• Language: croatian
• URN:NBN: urn:nbn:hr:199:738627
• Study programme: Title: Social Work; Study programme type: university; Study level: undergraduate; Academic / professional title: sveučilišni/a prvostupnik/prvostupnica (baccalaureus/baccalaurea) socijalnog rada (sveučilišni/a prvostupnik/prvostupnica (baccalaureus/baccalaurea) socijalnog rada)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Closed access
• Created on: 2020-09-17 09:56:34